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Harry

“Thank you for giving me a little piece of my life back!”

Harry is in his twenties and lives in his own specially adapted annexe within his parents’ house in Sussex and has a very supportive family. He has learning difficulties and is unable to communicate verbally – he uses a combination of body language, some vocalisation and pictures or objects of reference to communicate. He also has epilepsy and is fed exclusively via a percutaneous endoscopic gastrosomy (PEG) tube.

More respite care

Harry’s mum has said “We struggled up to the age of 18 – we felt we were penalised for being working parents and had no help at all.” Harry’s mum has now transferred their own carers to HomeCareDirect. “We can actually manage the care ourselves now, particularly with regard to respite care. Before, we only had six weekends of respite a year, but now we can organise a proper holiday and now the carers can move into our home which is less unsettling for Harry. We feel we’ve got a little bit of our life back!”

Greater flexibility

Directing their own support with the help of HomeCareDirect has also allowed the family greater flexibility – “Harry only has four hours of care a day and before, we sometimes used to have to stay up all night when he wasn’t well. Now we can utilise the hours when we need them.” Managing your own care typically allows families this greater flexibility and at HomeCareDirect, we are there to support people in this way. We help people find the right personal assistants, help with interviewing, and ensure that the legalities of employing staff are all taken care of – from the insurance, payroll and funding management to all other aspects of employer responsibility.

Training taken care of

At HomeCareDirect we ensure that Harry’s personal assistants continue to be trained to CQC standard. Harry has intensive moving and handling requirements – he transfers using hoists and is at high risk of pressure sores. He uses a motorised wheelchair and needs full support with washing and dressing as well as intensive physiotherapy. He can quickly become overheated and will usually have a seizure if he gets hot. At HomeCareDirect, we have a team of qualified independent living nurses who are there to support the families we work with every step of the way. We also have a 24 hour telephone support line for our clients.

A full life

HomeCareDirect is dedicated to supporting people to live independently in their own home using personal budgets and direct payments. Harry has a varied and active social life – he likes football, going to scouts and his personal assistants assist him in using Facebook to keep in touch with friends.

A big thank you goes to Harry and his family for letting us share their story here.


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