Jo has received support from HomeCareDirect for over 15 years.  She receives a care package to keep her mind busy and away from food, this is due to Prader Willi Syndrome.  Prader-Willi syndrome is a rare genetic condition that causes a wide range of physical symptoms, learning difficulties and behavioural problems. It’s usually noticed shortly after birth.

The support Jo receives from her three PAs, gives her freedom to make choices and to access the community in a safe way. It is vital that she is kept active and to not lead a sedentary life as her health is a priority.

Jo leads a very busy week, with gym, cooking, exercise classes, cinema trips, shopping trips, socialising with her friends, adult education class, and an Art class.

Jo is also a volunteer for the local library and attends a choir each week.  Both of these Jo is so keen to get back to, once it is safe to do so.

Throughout the month of May it was Awareness month for PWSA UK.  With restrictions still being in place, meeting people was not something we could all do.  So this year it was decided that we would walk the coast of Britain virtually.  All the walkers downloaded the app and calculated their steps each day calculating a total of 7,063,080 steps, completing it in 3 weeks!  Jo, her sister and her niece completed the walk and raised over £250.  In total £15,000 was raised by all the walkers, which is fantastic during a pandemic.

We want to say a big well done to Jo and her family for getting involved and raising money for PWSA UK